Join the mailing list

for parents

  • for parents

Whether you just received unexpected news about your unborn baby, or you are further along the path through the unexpected – we have information and links to supports.

You are not alone.

Information resources

Information to help you understand what is happening and help you find your way forward through the unexpected.

Mental health and wellbeing supports

A curated list of support professional and peer support organisations to help you move through the unexpected.

Diagnosis support group directory

A directory of links to diagnosis specific support groups and patient support organisations to help you connect with others.

Stories of prenatal diagnosis

A directory of links to stories about prenatal diagnosis, from other parents who have moved through the unexpected.

The glossary of terms and teams

A glossary to help you understand all the words and the roles of the professionals who may be involved in your care.

Guidelines and standards

Links to current guidelines and standards, to help you know what you can expect from your care team.