guidelines

Guidelines and practice resources

Prenatal screening and diagnosis

Prenatal Screening for Chromosomal Conditions Including Down Syndrome: Practice Resource

Down Syndrome Queensland. (2022).
Endorsed by Through the Unexpected, RANZCOG and other organisations.

“The purpose of this practice resource is to provide evidence based information supporting health care professionals to enable prospective parents to make informed decisions about prenatal screening for aneuploidy and, where relevant, the future of their pregnancy.”

Go to the the resource website
Open the practice resource (PDF)

Parent-centred Communication in Obstetric Ultrasound: ASUM Guidelines

Australasian Society for Ultrasound in Medicine. (2022).
Endorsed by Through the Unexpected and other organisations.

The guidelines “provide a pragmatic framework for ultrasound practices, professional bodies and educational institutions when delivering news of unexpected or adverse outcomes. In addition, the recommendations seek to support sonographers and educators by outlining specific phrases and parent-centred communication strategies they can apply, as research indicates this level of specificity is important to expectant parents.”

Go to the ASUM guidelines directory
Open the ASUM guidelines (PDF)

Screening and diagnosis of fetal structural anomalies and chromosome conditions: Clinical guideline

RANZCOG. (2024)

To guide decision making for the use of screening and diagnostic tests to identify fetal structural anomalies and chromosome conditions (for standard care).

Go to the RANZCOG guidelines page
Open the Clinical Guidelines (PDF)

Statement on Genetic Carrier Screening

This statement has been developed and reviewed by the Genomics Advisory Working Group & Women’s Health Committee and approved by the RANZCOG Board and Council. Interim update: 2024

Go to the RANZCOG guidelines
Open the Statement (PDF)

UK consensus guidelines for the delivery of unexpected news in obstetric ultrasound: The ASCKS framework

Johnson J, Arezina J, Tomlin L, Alt S, Arnold J, Bailey S, et al. (2020). Ultrasound. 

Please note: These guidelines are specific to the UK but are shared due to the inclusion of condition specific language examples determined with patient organisations. 

Download the PDF Guide
Go to the peer-reviewed paper

Pregnancy care

Pregnancy and Postnatal Care: Living Guidelines

Living Evidence for Australian Pregnancy and Postnatal Care.

“Evidence-based clinical recommendations for everyone who needs or works in pregnancy and postnatal care”. Includes guidelines for clinical assessments related to fetal development and anatomy, fetal chromosomal conditions and social and emotional screening.

Go to the living guidelines website

Mental health

Mental Health Care in the Perinatal Period: Australian Clinical Practice Guideline

Centre of Perinatal Excellence (COPE). (2023).

“This Guideline provides a reliable and standard reference for health professionals providing care to women in the perinatal period. By providing a summary of the currently available evidence on effective approaches to mental health care at this time, it aims to improve a woman’s experience of pregnancy and early parenthood, her emotional well-being, her safety and outcomes for all families.”

Go to the guideline website
Open the clinical guidelines (PDF)

Stillbirth and perinatal palliative care

Care Around Stillbirth and Neonatal Death Clinical Practice Guideline

The Centre of Research Excellence in Stillbirth (Stillbirth CRE) & Perinatal Society of Australia and New Zealand (PSANZ). (2024)

“This guideline includes 126 recommendations spanning seven major areas related to care around perinatal death… The aim of the guideline is to improve service provision and promote best practice care around perinatal death in Australia and Aotearoa New Zealand. Care begins at diagnosis, continues through pregnancy to birth, postnatal care and longer-term support including next pregnancies.”

Go to the Stillbirth CRE guideline page
Open the CASaND Guideline (PDF)

A Practical Guide to Palliative Care in Paediatrics

Palliative Care Australia ad Paediatric Palliative Care Australia and New Zealand. (2023).

“This guide addresses the many and varied aspects of caring for dying children and their families. This includes pain and symptom management, practical supports, psychosocial issues, bereavement support, communication and available resources.”

Go to the Paediatric Palliative Care page
Download the guide (PDF)

Standards of care

Standards of care provide nationally consistent statements of the level of care consumers can expect from health service organisations.

Stillbirth Clinical Care Standard

Australian Commission on Safety and Quality in Health Care (2022).

Sets the standard expectations regarding screening and diagnosis of congenital anomalies including:

  • the use of clear and sensitive language in alignment with the ASUM Parent-centred Communication in Obstetric Ultrasound Guidelines,
  • right to accept or decline screening and diagnostic tests or opt-out of particular results,
  • verbal and written information should be provided following ultrasounds,
  • all women should be offered access to an interpreter,
  • if any concerns about the health or welfare of a fetus are identified, women should be referred for further investigation and care and should be provided access to information about how to access relevant support in the interim.

Women and families who experience the death or a baby or are told that their baby will not live long because of a life-limiting condition, should be offered care to support physical, emotional, psychological and spiritual wellbeing (p. 54).

Go to the the Standard website
Download the Standard (PDF)

The National Safety and Quality Health Service (NSQHS) Standards 

Australian Commission on Safety and Quality in Health Care.

“The primary aims of the NSQHS Standards are to protect the public from harm and to improve the quality of health service provision. The eight NSQHS Standards provide a nationally consistent statement about the level of care consumers can expect from health services.”

The NSQHS Standards represent the level of care consumers can expect from health service organisations. Specifically, we note:

  • Health services should work in partnership with consumers,
  • Systems should be in place to deliver comprehensive care that meets the individual needs of consumers, this includes mental health and wellbeing support.
  • Systems should be in place to minimise harm,
  • Health services processes should support effective communication with consumers that activity involves them in their care, meets their information needs and involves shared-decision making.
Go to the NSQHS Standards website
Download the Standard (PDF)