wellbeing support – Through the Unexpected

For many parents, the news that their baby has a difference in their genetics, health or development comes as a shock. The time that follows has been described as a rollercoaster of emotions, and for many – the experience of prenatal diagnosis may be traumatic.

One positive step you can take is to seek support. You may find support by reaching out to family and friends, professionals or other parents who have been through the unexpected.

We have provided some links below to help you find someone to walk this journey with you.

If you have been given a specific diagnosis, you may also find support by reaching out to a diagnosis-specific support group, these can be formal or informal support groups through platforms like Facebook – click here to view our directory.

COPE: Centre of Perinatal Excellence is Australia’s peak body focussing on the emotional and mental health of hopeful, expectant and new parents. The new e-COPE Directory lists professionals and support organisations with a special interest, knowledge and/or expertise in pre and postnatal emotional health.

You can search the c-COPE Directory to find support for decision making, and coping with the news and the time beyond. The directory offers specific categories for people who are:

Expecting a baby and birth, seeking support for congenital anomalies, and
New Parents, seeking support for infants with special needs

We collaborated with COPE to create some information about coping with unexpected news, seeking help following unexpected news, and tips for families and friends.

ForWhen provides new and expecting parents—mums, dads, and guardians—with a caring, supportive mental health navigation service, to guide you and your family throughout your perinatal journey, from conception, up until your child is 12 months old.

It’s a national support line that connects you to the right service that can help you understand what you’re feeling and provide the guidance and support you need at the right time.

ForWhen helpline: 1300 24 23 22
9.00am and 4.30pm Monday – Friday to speak with a local specialist.

PANDA offers a range of programs to support people and their families to recover from perinatal anxiety and depression and to raise awareness in the community. PANDA is driven by the lived experience of people affected by perinatal anxiety and depression. The PANDA website has a mental health checklist to see how you are travelling.

PANDA helpline: 1300 726 306
Monday – Saturday 9am – 7:30pm AEDT

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Check-in point: The following organisations provide information and support for women and families who face loss or a Termination For Medical Reasons (TFMR). Not all fetal anomalies or differences prompt decision-making about the pregnancy or are considered life-limiting, but for those who have received such a diagnosis or face the options, it is important to know that support and understanding are available.

You are not alone.

The Pink Elephants Support Network provides the latest resources, information and peer-support for anyone impacted by early pregnancy loss.

“Our Peer Support Programme is a community of women who have all gone through the heartbreaking experiences of losing our much-loved babies, and we want you to know we truly understand, you are not alone, and you did nothing wrong. We’ve been where you are, we get it. And we’re in this together.”

The Pink Elephants website offers information and stories related to Termination For Medical Reasons (TFMR) along with ways to connect with the TFMR community.

The Perinatal Loss Centre provides support to health professionals and families affected by the death of babies.

The Perinatal Loss Therapist Register is a courtesy facility to provide information on registered therapists who may be available to support bereaved parents, to support access to Australia-wide counselling support for parents who have experienced perinatal loss. The therapists on the register have completed The Perinatal Loss Centre’s training course, Perinatal Loss in Practice: What Therapists Need to Know.

The register is available here.

Red Nose Grief and Loss provide specialised bereavement support free of charge to any person affected by the sudden and unexpected death of a baby or child during pregnancy, birth, infancy or childhood.

“No matter where you are at in your grief journey, Red Nose qualified Bereavement Counsellors are available to support you by phone, face to face or online via web chat.”

The Red Nose Grief and Loss website includes information about medical termination and they provide free support to families who have experienced loss or have moved through a medical termination. This support includes the Hospital to Home program. Support can be provided face-to-face, by phone or videoconference and is tailored to individual needs. Parents decide how they would like to be supported

Red Nose 24hr Support line 1300 308 307

The website includes a peer supporter live chat option.

SANDS

Sands is a volunteer-based organisation providing individualised care from one bereaved parent to another, giving them support and hope for the future, following the death of a baby. Sands aims to meet bereaved parents wherever they are, physically, or emotionally, when their pregnancy has ended, or their baby has died – whether recently or many years ago.

The SANDS website offers a section on medical termination with a fact sheet and a link to contact a parent supporter.

SANDS 24hr line 1300 072 637 (for miscarriage, stillborn and newborn death support)

Harrison's Little Wings

Harrison’s Little Wings supports women and their families who receive a poor or fatal diagnosis during pregnancy. Founder, Melanie McKenzie, and other mothers created a peer support program that provides very unique offering – support for families suffering and struggling along this journey, designed by mothers who have already been on that very same journey and had faith, comfort and support to pull them through.

“We care about making the journey as comforting, supportive and helpful as possible.”

Harrison’s Little Wings offers a range of support programs both online and within the Brisbane and Gold Coast areas.