The heartbreak of perinatal and infant loss (podcast)

We know that prenatal diagnosis is more common than many think. Yet, we rarely hear the stories of the people that have received unexpected news about the health, development or genetics of their unborn baby. We wish to change that so parents no longer feel hidden or isolated.

We have collated parents stories to share with the variety of reactions, experiences and outcomes.

Note:

These stories appear in random order.
Stories which help one person, may be unhelpful for another.

Please use the dropdown category box to select a particular topic or to avoid other topics.

The decision-making category includes stories that reflect the vast array of potential experiences.

Click on the logo/image to go directly to the story, or select the View Profile link if you wish to read more about it first.

Please contact us to let us know about any other stories we should include here.

Website: https://www.rch.org.au/podcasts/Life,_Love_and_Loss/

About the resource

A podcast for families caring for a child who is dying

“This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges.”

The link will open to the suite of podcasts.

Season 2, Episode 2: The heartbreak of perinatal and infant loss features two mothers who received life-limiting prenatal diagnoses and share their stories of moving through perinatal palliative care.

Notes

T18, Edwards syndrome, Edward’s, Trisomy 18, twin to twin transfusion syndrome,