The heartbreak of perinatal and infant loss (podcast) » stories of prenatal diagnosis

While congenital anomalies are more common than we think, we rarely hear the stories of the people that have received a prenatal diagnosis. We have collated some stories here, to share with you the variety of reactions, experiences and outcomes.

Note: these stories appear in random order.

We understand that stories which may empower one person, may be unhelpful for another.

Please use the dropdown category box to select a particular topic
or to avoid other topics. The decision-making category includes stories that reflect the vast array of potential experiences.

Select the View Profile button to read more about the story, or click on the image to go straight to the source.

Please contact us to let us know about any other stories featuring a prenatal diagnosis of congenital anomalies so we can share them here.

Photo of The heartbreak of perinatal and infant loss (podcast)

About the resource

A podcast for families caring for a child who is dying

“This podcast series focuses on the experience of parents of children who have died or are likely to have a short life. Despite advances in health care, children and young people still sadly die from a range of life limiting conditions. The parents in this series have been supported by palliative care teams to face multiple challenges in caring for their children. These parents bravely share the love and beauty of their children and the joy and sadness of their individual experiences. They hope their voices can support, inform, and better prepare other families who may need to face similar challenges.”

The link will open to the suite of podcasts.

Season 2, Episode 2: The heartbreak of perinatal and infant loss features two mothers who received life-limiting prenatal diagnoses and share their stories of moving through perinatal palliative care.

Notes

T18, Edwards syndrome, Edward’s, Trisomy 18, twin to twin transfusion syndrome,