Stories and images from the CleftPALS family (PDFs) » stories of prenatal diagnosis

We know that prenatal diagnosis is more common than many think. Yet, we rarely hear the stories of the people that have received unexpected news about the health, development or genetics of their unborn baby. We wish to change that so parents no longer feel hidden or isolated.

We have collated parents stories to share with the variety of reactions, experiences and outcomes.


  • These stories appear in random order.
  • Stories which help one person, may be unhelpful for another.

Please use the dropdown category box to select a particular topic or to avoid other topics.

The decision-making category includes stories that reflect the vast array of potential experiences.

Click on the logo/image to go directly to the story, or select the View Profile link if you wish to read more about it first.

Please contact us to let us know about any other stories we should include here.

Photo of Stories and images from the CleftPALS family (PDFs)

About the resource

CleftPALS NSW offer some stories by parents and an adult with lived experience of a cleft.

On the page, you will find that Sophie’s story and Zara’s story both start after their cleft was found at the mid-gestation scan.