Nova-Lee’s story (Blog) » stories of prenatal diagnosis

We know that prenatal diagnosis is more common than many think. Yet, we rarely hear the stories of the people that have received unexpected news about the health, development or genetics of their unborn baby. We wish to change that so parents no longer feel hidden or isolated.

We have collated parents stories to share with the variety of reactions, experiences and outcomes.


  • These stories appear in random order.
  • Stories which help one person, may be unhelpful for another.

Please use the dropdown category box to select a particular topic or to avoid other topics.

The decision-making category includes stories that reflect the vast array of potential experiences.

Click on the logo/image to go directly to the story, or select the View Profile link if you wish to read more about it first.

Please contact us to let us know about any other stories we should include here.

Photo of Nova-Lee’s story (Blog)

About the resource

“This is Nova-Lee’s short story.”

Nova-Lee had an unbalanced Atrioventricular Septal Defects (AVSD), hypoplastic left heart syndrome, coarctation of the aorta and a leaky valve. Her heart anomalies were only found at 29w+4d during a scan prompted by premature water rupture.

“We spent a week in Brisbane, more echo’s, meetings with cardiologists, social workers and also palliative care (comfort care). We spent all the time we could bed side. A decision no parent should have to make, we decided to return to Townsville on comfort care.”

We speak of Nova-Lee Anne ALOT. We love her and miss her oh so much. She’s our little heart angel.”

Snippets from