Osteogenesis Imperfecta Society of Australia » directory

Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.

Search for a particular diagnosis or condition using the search box.

If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.

Photo of Osteogenesis Imperfecta Society of Australia

Osteogenesis Imperfecta Society of Australia

Location of support Australia wide Website: https://www.oiaustralia.org.au/

About the organisation

The OI Society of Australia was formed in 1977 with the three main aims being to:

  1. Offer information and support to individuals and families affected by O.I.
  2. Encourage and support research
  3. Provide public and professional education and create awareness.

These three aims continue to be our purpose and with the continued improvement in technology particularly electronic media we find that connecting people has become easier and the dissemination of information potentially more comprehensive. Our focus over the coming years will be to focus on raising awareness about OI and ensuring that people living with OI can access and fully participate in both our own activities and in the mainstream activities of society.

We will continue to hold a national conference on OI every two years; to drive and support Wishbone Day; and to promote and support educational events for schools, colleges, universities and medical professionals.   This website seeks to be our link to these and the wider community.

Condition or anomaly

OI, Osteogenesis Imperfecta, brittle bone disease, COL1A1 gene, COL1A2 gene