Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.
Search for a particular diagnosis or condition using the search box.
If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.
Heart Kids
About the organisation
Finding out that your child or unborn baby has a heart condition can be overwhelming. HeartKids is here to support you.
Eight babies are born each day with a congenital heart disease. In most cases, the cause of congenital heart disease is unknown. Some children may also acquire a heart disease when they are young due to an illness or infection.
HeartKids has been working with and supporting families on their childhood heart disease journeys for over 40 years. We provide practical and emotional support for your family in hospital and in the community. We’re here to listen and to guide you to the right information and services.
Support offered:
Practical support such as financial assistance and travel subsidies
Emotional support such as professional mental health support and families programs
Peer support events, groups and mentors
Resources
Condition or anomaly
congenital heart disease, heart anomaly, heart condition, Atrial septal defect, Ventricular septal defect, Atrioventricular septal defect, Transposition of the great vessels, Coarctation of the aorta, Tetralogy of Fallot