Use this directory to find Patient Support Organisations including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations
Search for a particular diagnosis or condition using the search box. If you know of an organisation that is missing from the list, please submit a new suggestion.
If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.
Supporting Individuals and Families Impacted by 7q11.23 Duplication
After diagnosis, families are not sure where to turn for answers. We’ve walked in your shoes and we can help.
Duplication Cares is committed to supporting families with children diagnosed with 7q11.23 Duplication Syndrome, as well as being dedicated to raising awareness in the medical community about the existence and treatment of this disorder.
By being a member of our support group, you will have access to other families who’ve been influenced by the duplication. You will be able to share ideas, concerns, and ask questions of our group. We support families around the world. You will also receive annual newsletters containing the latest information from families and professionals who assist 7q11.23 duplication individuals. Membership to the group is free.
7q11.23 Duplication
