Charcot-Marie-Tooth Association Australia Inc. » directory

Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.

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If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.

Photo of Charcot-Marie-Tooth Association Australia Inc.

Charcot-Marie-Tooth Association Australia Inc.

Location of support Australia wide Contact phone: 02 9767 5105 Website:

About the organisation

The Charcot Marie Tooth Association Australia Inc. (CMTAA) began as a Support Group in 1988, and was incorporated in 1990 as a registered charity.

The motivation to establish CMTAA Inc. was to meet the need for people with CMT to communicate with each other and provide mutual encouragement.

Over the years we have slowly “evolved” and are now moving forward at an unprecedented pace. In 2018, the National Committee proposed the Association become known as CMT Australia, this change was proposed and accepted at the 2018 National AGM.

Raising Awareness of CMT

We are:

Engaging with persons with CMT, their families, carers and the community. This occurs with contact with the National Office, face to face support gatherings, holding of a National Awareness day, on social media – Facebook and Twitter, publication of our Newsletter three times a year and this website.

Engaging with Medical and Allied Health Professionals in every State to raise their awareness of the condition, and to inform them of strategic options they can assist their patients with to enhance their quality of life.

Using data compiled for the ‘Reducing the Health Burden of Charcot-Marie-Tooth in Australia’ Report to approach Members of Parliament to raise awareness, and of the need for facilities to assist persons with CMT access services they need in one place to enhance their quality of life.

Through our Research Grants, attracting applications to fund research into CMT and engaging with the research community.

Acknowledging and promoting September: International Awareness Month for CMT.

Condition or anomaly

Charcot Marie Tooth disease, CMT, Charcot-Marie-Tooth