Use this directory to find Patient Support Organisations including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations
Search for a particular diagnosis or condition using the search box. If you know of an organisation that is missing from the list, please submit a new suggestion.
If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.
Australian X & Y Spectrum Support (AXYS) help support individuals and families living with X & Y sex chromosome variants in particular; Klinefelter Syndrome/XXY, XYY, XXX, XXYY, XXXY, XXXXY and associated variants.
We are here to increase awareness and to inform the health and education sectors and broader community on what these X and Y sex chromosome variants are and the impact it has on individuals and families and how they can better support, guide and implement appropriate tools and treatment plans. We aim to ensure that everyone living with an X & Y chromosome variant has the opportunity to reach their fullest potential living a happy life with minimal impacts from possible health related issues.
We can offer a wealth of knowledge, advice, guidance and support but it’s important to note that we are not medical professionals. We can help direct you to find the right health care professionals that can give you supportive, knowledgeable and specific advice.
X & Y sex chromosome variants in particular; Klinefelter Syndrome/XXY, XYY, XXX, XXYY, XXXY, XXXXY
