Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.
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22q Foundation Australia and New Zealand
About the organisation
The Foundation is made up of a group that consists of individuals with 22q11.2 Deletion Syndrome, parents, grandparents, siblings and carers of individuals with 22q11.2 deletion Syndrome as well professionals and multidisciplinary staff and researchers.
The Foundation was founded by the late Dr Tony Lipson of the Children’s Hospital Westmead, NSW. Dr Lipson helped parents establish the first support group in the world for individuals with the syndrome. The foundation has been run for many years by countless volunteers who have given their time to help other families also walking this same path.
Condition or anomaly
22q11.2DS, VCFS, Di George Syndrome, 22q, 22q11.2 Deletion Syndrome, Shprintzen Syndrome, CATCH 22, Conotruncal anomaly face syndrome, Cayler cardiofacial syndrome.