Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.
Search for a particular diagnosis or condition using the search box.
We have another page if you are looking for mental health and wellbeing related supports, such as counselling, support for decision making or peer support.
22q Foundation Australia and New Zealand
The Foundation is made up of a group that consists of individuals with 22q11.2 Deletion Syndrome, parents, grandparents, siblings and carers of individuals with 22q11.2 deletion Syndrome as well professionals and multidisciplinary staff and researchers.
The Foundation was founded by the late Dr Tony Lipson of the Children’s Hospital Westmead, NSW. Dr Lipson helped parents establish the first support group in the world for individuals with the syndrome. The foundation has been run for many years by countless volunteers who have given their time to help other families also walking this same path.