22q Foundation Australia and New Zealand » directory

Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.

Search for a particular diagnosis or condition using the search box.

If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.

Photo of 22q Foundation Australia and New Zealand

22q Foundation Australia and New Zealand

Location of support Australia wide Website: https://www.22q.org.au/

About the organisation

The Foundation is made up of a group that consists of individuals with 22q11.2 Deletion Syndrome, parents, grandparents, siblings and carers of individuals with 22q11.2 deletion Syndrome as well professionals and multidisciplinary staff and researchers.

The Foundation was founded by the late Dr Tony Lipson of the Children’s Hospital Westmead, NSW. Dr Lipson helped parents establish the first support group in the world for individuals with the syndrome. The foundation has been run for many years by countless volunteers who have given their time to help other families also walking this same path.

Condition or anomaly

22q11.2DS, VCFS, Di George Syndrome, 22q, 22q11.2 Deletion Syndrome, Shprintzen Syndrome, CATCH 22, Conotruncal anomaly face syndrome, Cayler cardiofacial syndrome.