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Prenatal diagnosis is more common than you may guess.

One in 22 babies has a “major congenital anomaly”, a difference in their genetics, health or development that is associated with significant medical care, disability, or early death. We know that most of these babies receive a diagnosis before they are born. Yet, there are even more babies who aren’t routinely counted in this statistic, including babies lost before 20 weeks gestation and babies who have anomalies or differences that are considered to be “minor”. Hence, many expectant parents receive a prenatal diagnosis.

An unexpected prenatal diagnosis can be distressing and traumatic. Sometimes the news is the hardest, sometimes it’s the decisions, and sometimes it’s the gaps in care and support received.

For many, the initial news of a possible fetal anomaly or difference is only the start of the journey through the unexpected.

Through the Unexpected is a National Health Promotion Charity that aims to improve the experience of prenatal diagnosis, both for the expectant parents who receive a fetal anomaly diagnosis and for the professionals who support parents.

Resources for Parents

Information, links and more for parents who have received a prenatal diagnosis of a fetal anomaly or variation.

Mental health and wellbeing supports, diagnosis specific groups and professional support options.

Learn more about out National Health Promotion Charity and the work we are doing to improve the experience of prenatal diagnosis.

Resources and links for professionals who work with parents who receive a prenatal diagnosis.

Guidelines relevant to prenatal screening and diagnosis.

Supporters and collaborators

Supporters and collaborators who make this all possible (COMING SOON).