Many expectant parents are told that their unborn baby may have a difference in their health, development or genetics – also known as a fetal anomaly. A fetal diagnosis can mean the baby may need significant medical care, have a disability, and at times, a diagnosis means the baby may die.

An unexpected fetal diagnosis can be distressing and traumatic. Sometimes the news is the hardest, sometimes it’s the decisions and uncertainty and sometimes it’s the gaps in care or judgements and assumptions from others that harm.

For many, the initial news of a possible fetal anomaly or difference is only the start of the journey through the unexpected. Yet, support during and after unexpected news is not equitable.

We’re working hard to change that.