Use this directory to find Patient Support Organisations including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations
Search for a particular diagnosis or condition using the search box. If you know of an organisation that is missing from the list, please submit a new suggestion.
If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.
Receiving the diagnosis of Spinal Muscular Atrophy is one of the most devastating moments a parent and family can experience. However, over time you will learn to establish a new sense of normal; you will adapt finding new ways of doing things. You may find you have many questions regarding SMA care options and how to manage e person’s at times, complex care.
You are not alone,
we are here to support you.
Spinal Muscular Atrophy Australia Inc. is Australia’s peak body, providing Australians living with Spinal Muscular Atrophy and their families with best practice information care options, resources and choices for themselves or their children, when living with the condition.
spinal muscular atrophy, SMA
