Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.
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Fragile X Association of Australia
About the organisation
Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.
We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers.
WE PROVIDE:
Helpline 5 days per week
Support to individuals and families
Counselling
Seminars and workshops
Information and referrals
Our small team of staff is based in Sydney and is supported by a Board of eight volunteer directors and other committed volunteers across the states.
Condition or anomaly
Fragile X, CGG repeats,