Fragile X Association of Australia » directory

Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.

Search for a particular diagnosis or condition using the search box.

If you are looking for mental health and wellbeing related supports, such as therapists and peer support, please search the Centre of Perinatal Excellence e-COPE directory.

Photo of Fragile X Association of Australia

Fragile X Association of Australia

Location of support Australia wide Contact phone: 1300 394 636 Website:

About the organisation

Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.

We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers.

Helpline 5 days per week
Support to individuals and families
Seminars and workshops
Information and referrals

Our small team of staff is based in Sydney and is supported by a Board of eight volunteer directors and other committed volunteers across the states.

Condition or anomaly

Fragile X, CGG repeats,