Use this directory to find patient support organisation including condition and diagnosis-specific formal and informal groups and Disabled Persons and Family Organisations.
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We have another page if you are looking for mental health and wellbeing related supports, such as counselling, support for decision making or peer support.
CHARGE Syndrome Australia
CHARGE Syndrome Australasia was established in 1994 and is the only volunteer not-for-profit support group dedicated to improving the lives of individuals with CHARGE syndrome, in Australasia.
CHARGE syndrome is a complex syndrome of multi sensory impairments. Individuals have impaired hearing, vision, smell, taste, touch, proprioception and inner ear balance. Multiple disciplines are involved long term in the lives of these individuals; from medical intervention to communication strategies, sensory integration, behaviour management, therapy and education support. Unfortunately for families, many of our health and educational professionals do not fully understand CHARGE syndrome and the complexities of multi sensory impairment.
The Association is committed to improving this knowledge gap by raising awareness of CHARGE syndrome through its activities. We host biennial conferences, organise local networks and events (CHARGE Champions), provide outreach services to families and professionals (CHARGE Assist), and contribute to research.