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CHARGE Syndrome Australia
About the organisation
CHARGE Syndrome Australasia was established in 1994 and is the only volunteer not-for-profit support group dedicated to improving the lives of individuals with CHARGE syndrome, in Australasia.
CHARGE syndrome is a complex syndrome of multi sensory impairments. Individuals have impaired hearing, vision, smell, taste, touch, proprioception and inner ear balance. Multiple disciplines are involved long term in the lives of these individuals; from medical intervention to communication strategies, sensory integration, behaviour management, therapy and education support. Unfortunately for families, many of our health and educational professionals do not fully understand CHARGE syndrome and the complexities of multi sensory impairment.
The Association is committed to improving this knowledge gap by raising awareness of CHARGE syndrome through its activities. We host biennial conferences, organise local networks and events (CHARGE Champions), provide outreach services to families and professionals (CHARGE Assist), and contribute to research.
Condition or anomaly
CHARGE syndrome, CHARGE Association, CHD7